I forgot to tell you that I spoke with Julie about her money situation. You see... she's swimming in money right now, and I didn't know why. As her sister, I was concerned. So... I asked her.
She not only has that guy living with her (23 year-old boyfriend) but now she has some other girl living with her, and the girl is renting Kayla's room. Julie said the girl pays $400 a month to live there (for only the room, the girl buys all her own supplies and food), and so Julie has extra money to spend every month.
Now, I think renting a room is a great idea. Her house is really big, and she was alone in it, living only out of her bedroom (which had a fridge, computer, bathroom and microwave in it so she never had to leave). This is a terrible waste of space... and you know how I feel about a waste of anything! So... that part of me is happy that she's got someone renting the room.
I asked her about what she was going to do when the kids moved back, and she said that there is nothing she has to do... that they can all live there just fine. That part of it - as their legal Guardian - I have issues with. But the problem is... it's not "that is against the rules and therefore wrong" kind of problem... instead it's a "that just feels wrong" kind of problem. When the kids move back home, Julie tells me, she's going to move Kayla and Kayte into the same room and rent out Kayla's room.
I talked to Kayla yesterday afternoon about the whole thing, as I was unsure if she knew or not. Julie calls and talks to them mostly every night now, so I assumed she had. However, I was wrong. Not only did the kids not know about it, they are not happy about it. The kids feel that the rooms are 'theirs' and that Julie should be doing nothing other than working to get them back home. I understand how they feel, but at the same time, I need to teach them to respect their mom's wishes. This is a hard one... because they rightfully should NOT have respected her decisions for the past two years - but now they need to try to do it. I guess this is where the 'family counseling' is going to come into play.
Speaking of the Family Counseling... Natasha asked me if I had set that up (when she was here on Monday). I told her that I had not, and that I had not intended to do so. I personally feel that at the least the State should arrange this, and if not them, then Julie most definitely should! But it's not my place to work on setting up, making the arrangements, obtaining the authorization for, and paying for THEIR family therapy.
Ooooo.... and speaking of what Julie should or should not do.... Julie called me yesterday to ask if Kayte could go out to Gainesville (Football game) with Sonya again this weekend. Sonya called Julie instead of me for some reason to ask. Last time Kayte went out with her they didn't get home till like 2 am. Sonya is a court reporter, her husband a retired judge, and she just doesn't understand why the State will not allow Kayte to sleep over her house. I've already talked to Sonya about this... told her that she needs to go through the whole process: fingerprinted, background check, home survey/visit. She knows the answer to that already. But still she thinks she doesn't need to do it (or so Julie tells me).
N-E-ways.... Julie proceeds to tell me that it is not FAIR that the State is "punishing the kids" when they didn't do anything wrong. I tried to explain to Julie what the reasoning was - from the State's point of view. (The kids are now 'property of the State' and therefore they are liable for anything they do or anything that happens to them) Julie said a couple of things that made it sound like it was the "big bad State's" fault. I quickly reminded her that there was ONE PERSON to blame for what happened. And I was on the phone talking to her right now. Yeah... that went over well.
Today Julie sends me a photo of her boyfriend, and tells me how great everything is - telling me that I should realize what a great guy he is and that I should like the fact that he's living with her. I, of course, respond back to her saying that it's not HIM I dislike... it's how she constantly moves men into the house. I bring up the sex addict problem. I bring up how it was one of the three things the kids asked for... for her to stop having men over to either sleep with her all the time or to move in penniless. Julie, of course, tells me that 'this one is different'... he just got a job... and that if THIS ONE doesn't work out, she promises she'll stop doing it when the kids come back home. I tell her she needs to get this help BEFORE the kids come back home, not say 'it won't happen after they move back home'. She also sends an email telling me that she doesn't really HAVE a sex addict problem, that it's the attention she craves. (Then tells me about her sex life with this young guy - yuck, YUCK, YUUUUUCK!)
I was thinking about some things though in talking to her. (Julie followed up by calling me after the emails). She says how it's not fair that the kids are not allowed to go over to other people's houses because there is NO BREAK, - EVER - for Chris, Jonathan and I. And... she's right. She also was talking about all the extra money she now has since she has no kids, works and is renting out part of her house. So..................... I was thinking............. I should tell her that - instead of buying the kids things they don't need and spoiling herself rotten - I want her to start saving all the money, put it into a savings account - and when the kids move back with her, she can buy Chris, Jonathan and I a CRUISE together. Don't you think that's a great idea??? I LOVE IT! **laughing at the idea** Yeah.... mom and Katie know how likely THAT is to happen. But hey... the thought was good.
Chris and I have another busy weekend in store: we were asked yesterday afternoon to sing on the praise team this weekend at church, which of COURSE we jumped right on - love that! Tonight I have to go the pharmacy and fill Jonathan's prescription (which always takes 30 min to an hour) Tonight and tomorrow I have to help the boys with their laundry since it's now the height of a person... they've GOT to get it done. Justin and Chris have a baseball game in the morning. Then Chris and I have to be at church by 4:30 to sing. Sunday... the normal 5-trips... no wait... the high schoolers have bowling instead of meeting at the church. That's worse actually because it adds one extra trip. Now we go to/from in the morning, drop off the middle schoolers at 5, pick them up at 7. Then bring the high schoolers to the bowling alley at 7:30 and pick them up at 9.
Oh lordy... and let's not forget I still have Kayla's physical to do! Oh my goodness, where - WHERE - am I going to get the time for all of this?
Okay.... funny that I'm planning on putting the title of this blog "Money to Burn" because we just got a call from American Eldercare. How do I explain this.... when your parents are old in the State of Florida and in need of a nursing home or Assisted Living Facility, you apply for Medicaid. Doug was approved for medicaid, and the Medicaid office told us how much money we have to pay the ALF. But, the ALF charges more than that, so they have to have a way to make more money. So the State has this 'diversion' program that you have to apply for. The diversion program will pay the additional fee, up to a certain amount. They will also pay for other things... hearing aid if needed, $20 in over the counter products, transportation to the doctors, etc. Great, huh? Well, Doug was with this one company from the beginning, but Central Tampa (his ALF facility) told us we HAD to change his provider because they didn't 'accept' the plan he was on. They told us we HAD to go with this other company, American Eldercare. So.... they just called Chris and told him that they need to have a sit-down meeting with us and talk about what it's going to cost us. WHAT????? They expect to get any more money from us???? Are you kidding me?????? My heart is RA-CING right now.
Ironically, on the other line (holding) is Julie who tells me that I really need to get Zephyrhills water delivery at home and get my nails done. I want to vomit, I'm so sick right now.
I call back the lady, and sure enough - they want more money. I'm like... listen - Central Tampa already gets 100% of EVERY SINGLE PENNY he receives. They take 100% of his Medicare check and 100% of his semi-annual life insurance check. Not 90%.... 100%. WE DON'T HAVE any more money to give you. She said... then we don't qualify.
Great. So I have to send an email to Karim, who is in charge out there at Central Tampa ALF. He's going to be furious... but I'm to the point right now where I don't care. I'm so upset I'm sick over it. And before you even ask... I take care of all of this because - after 16 years of working in the medical field, with government programs, and with insurance - I understand it. And understanding it is half (if not more) the battle.
I'm also sick to think that poor Doug probably thinks I don't come to see him because I don't love him or something. Gosh.... that is SO SO SO SO SO not it. I wish I had an extra 3 or 4 hours in ANY day that I could drive out there and visit with him. I wish he knew the countless hours I have spent dealing with his insurance, with the Medicaid folks, with Karim and his group out there at Central Tampa, with the CARES office, with different agencies trying to get him the best care possible. I wish.............................
I wish when these kinds of things came up with Doug, I didn't feel so very hopeless. Putting someone you love in a facility, regarless of how nice it is, is still a lose - lose situation. Even in the situation such as Doug's where we are physically unable to care for him as he needs 24-hour nursing care, there is still some level of a guilty feeling, regardless of how you know it's the 'only thing to do'. Add to that the governmental paperwork which just adds a TON of stress. And add to THAT how everyone wants to make every penny possible in order to care for him.... it FEELS hopeless. I haven't felt hopeless in a while and I don't like it one single bit.
Wait... as I'm typing this... the woman from American Eldercare just called again. She's spoken with Central Tampa and they have decided to accept us at the SAME amount of money we are paying right now. So we are exactly where we were before, which is good.
God.... did I lose faith in You just now... publicly... IN my blog as I was typing??? Yeah, I think I did. Shame on me. God, I know I put this in your hands a long time ago. I surrendered myself to You not too long ago, and at that time, gave you my worries, my fears, my hopes, my dreams, my life. I gave it all to You, for Your glory. For a moment, it just felt as if it were put back into my hands. Thanks for taking it back out of my hands for me.... or was it that you simply reminded me that You are already in control? In either case, I thank you, I trust you, and I am humbled by your presence in my life every day.
To my blog readers, I leave you with this....
Live as though Christ died yesterday, Rose from the grave today, and is coming back tomorrow.
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